About Us

Uplifting Florida’s Prader-Willi Syndrome Community

Here's How We Do It

PWSA is a 501(c)(3) nonprofit organization providing support to individuals diagnosed with PWS, their families, communities, and care providers.

PWS Florida is dedicated to enhancing the lives of individuals with Prader-Willi Syndrome (PWS) and their families through comprehensive support, advocacy, and education. We are a state chapter of Prader-Willi Syndrome Association USA.

Our Programs & Initiatives

Educational Support:
We help increase understanding of Prader-Willi syndrome by sharing educational information and raising awareness within the community.

Fundraising and Community Support:
We hold fundraising initiatives to raise awareness and support our mission. Funds raised help us host educational and community events that bring families together.

National Collaboration:
PWS Florida works in conjunction with PWSA | USA, the national organization supporting research projects with the potential for immediate and high impact for the PWS community. PWSA | USA maintains a robust website full of resources at pwsausa.org.

Our Mission

Empowering Lives Through Awareness, Support, & Advocacy

Prader-Willi Syndrome Florida is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

Meet our BOARD MEMBERS

Committed to our Cause

Our board is composed of dedicated individuals committed to advancing the mission of our organization: to support individuals with Prader-Willi Syndrome (PWS) and their families through advocacy, education, research, and community engagement.