Resources
Prader-Willi Support Association
Please note: The resources listed below are provided for informational purposes only and are not officially endorsed by PWSFA. If you are aware of additional resources in the state of Florida that may be helpful, we encourage you to share them with us by submitting a comment through our contact form at: https://pwsflorida.org/
pwsausa.org
National Association to enhance the quality of life of and empower those affected by Prader-Willi syndrome.
fpwr.org
FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.
ipwso.org
An international non-profit membership organization supporting national Prader-Willi syndrome associations, as well as people with PWS, their families and the professionals who work with them.
Media
parentingspecialneeds.org
Get the latest news from Parenting Special Needs Magazine
disabilityscoop.com
The Premier Source for Developmental Disability News
Financial
ableunited.com
An ABLE United account gives Floridians with a disability a tax-free way to save while protecting public benefits.
Crisis Medical Assistance
nexushealthsystems.com/programs/jump-start-program-for-prader-willi-syndrome
A weight loss and behavioral management program for children with Prader-Willi Syndrome and other weight-related disorders
Medical Transportation
miracleflights.org
Provides free commercial flights to children and their families in need of life-changing medical care not found in their local communities.
School & Employment
stepupforstudents.org/scholarships/unique-abilities
Family Empowerment Scholarship for Unique Abilities
empoweredsolutions.org
Dr. Destiny Pacha, Educational Consulting Collaborating & Coaching
employu.org
A nonprofit disability employment service creating an inclusive workforce for people with disabilities.
fcchealthplan.com
Florida Community Care is the Managed Care Plan for the Intellectual and Developmental Disabilities Pilot Program
abletrust.org
The Able Trust is to advance employment for Floridians with disabilities through engagement, investment, and collaboration.
Clothing
magnaready.com
Magnetic Adaptive Clothing for Dexterity & Mobility Impaired
Pharmaceutical Companies
support4pws.com
Inspiring News and Stories from the PWS Community
Support 4 PWS
Discover tailored tools, heartfelt connections, and invaluable guidance to help navigate life with PWS—because no journey should be taken alone. Support4pws.com is a valuable resource for families navigating Prader-Willi Syndrome.
Support 4 PWS : News & Stories
From research advancements to heartwarming success stories, explore Support4PWS’s page to watch videos and read blogs about those living with Prader-Willi Syndrome.