TOGETHER WE THRIVE
Uplifting Florida’s Prader-Willi Syndrome Community
What is Prader-Willi Syndrome?
Prader-Willi syndrome (PWS) is a complex genetic disorder resulting from abnormality on the 15th chromosome. PWS causes low muscle tone, short stature if not treated with growth hormone, cognitive deficits, problem behaviors, and most notable, a chronic feeling of hunger which, when coupled with a metabolism that uses drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity.
Prader-Willi Syndrome Association | FLORIDA
How We Help
Our dedicated programs and initiatives are designed to provide comprehensive support and foster a strong, united Prader Willi community.
Events
We organize community events and workshops to bring together families, professionals, and advocates for Prader Willi Syndrome.
Family Support
We offer guidance, resources, and a compassionate network to help families navigate the challenges of Prader Willi Syndrome.
Advocacy
We advocate for the rights and needs of individuals with Prader Willi Syndrome, striving to influence policies and improve access to critical services.
Fundraising
Our fundraising efforts aim to secure vital resources for research, support programs, and initiatives that enhance the lives of those affected by Prader Willi Syndrome.
PROVIDERS IN FLORIDA
From endocrinologists to nutritionists and occupational therapists, these experts offer comprehensive care to enhance the quality of life and health outcomes for those affected by Prader Willi Syndrome.